Books and Publications

• Can You Help Me?: Inside the Turbulent World of Huntington Disease — Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it.With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder
• The Woman Who Stepped Into the Sea by Alice Wexler — When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America.
• The 36-Hour Day — By Nancy L. Mace & Peter V. Rabins. The most comprehensive guide to caring for people with Alzheimer's disease and other dementias — the gold standard since 1981, now in its 7th edition.
• Passages in Caregiving — By Gail Sheehy. Drawing from 17 years of personal experience, Sheehy maps the emotional stages of caregiving and offers practical guidance for each phase.
• The Emotional Survival Guide for Caregivers — By Barry J. Jacobs. A clinical psychologist shows how to look after your own mental health while caring for a sick or aging loved one, with real-world strategies.
• Take Your Oxygen First — By Leeza Gibbons. The Emmy-winning TV host shares lessons from caring for her mother with Alzheimer's, focusing on protecting the caregiver's own well-being.
• The Caregiver's Survival Handbook — By Alexis Abramson. A gerontologist's guide to caring for your aging parents without losing yourself — covering finances, medical decisions, and family dynamics.
• The Conscious Caregiver — By Linda Abbit. A mindful approach to caregiving that helps you find peace and purpose while navigating the challenges of caring for a loved one.
• Dementia Reimagined — By Tia Powell, MD. A bioethicist reframes how we think about dementia — moving past fear to a more compassionate, evidence-based approach to care.
• Eldercare 911 — By Susan Beerman & Judith Rappaport-Musson. The complete guide to avoiding crisis and creating workable eldercare plans — now updated and expanded.
• The Caregiving Wife's Handbook — By Diana B. Denholm, PhD. Honest, practical advice for women caring for seriously ill husbands — covering the emotional, practical, and intimate challenges.
• Stupid Things I Won't Do When I Get Old — By Steven Petrow. A witty, heartfelt look at aging gracefully and the caregiving lessons learned from his own parents — equal parts humor and hard-won wisdom.